I'm the proud ambassador of The Dutch Stichting Voor Sara. Established at the end of 2016 by Sara Verbrugges parents. Sara is a lively 2 year old girl from Dordrecht in The Netherlands who was born with the incurable muscle disease MDC1A.

MDC1A is a hereditary muscle disorder often noticed at birth or within the first few months of life. It is a type congenital muscular dystrophy (CMD) and has an incidence of 1 in 30,000 to 1 in 100,000. MDC1A is caused by a defect in the LAMA2 gene which is responsible for the production of laminin α2 protein (previously called merosin). MDC1A is sometimes referred to as LAMA2-related muscular dystrophy.

The aim of the foundation is to have more research done into this disease. But also to inform the general public about the many unknown and rarely occurring muscle diseases and the impact these have on sufferers and their families.

Give them all a chance for a healthier future, visit the website and make a donation.